Case #18: Every Cure Pt.2 (Gary)

2024/7/30

Symptomatic: A Medical Mystery Podcast

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David Fagenbaum

Gary Gravina

Grant Mitchell

Lauren Bright Pacheco

Stacey Gravina

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Gary Gravina：讲述了他患卡斯特尔曼病的经历，从最初的流感样症状到被诊断为卡斯特尔曼病，以及在治疗过程中经历的多次昏迷和痛苦。他强调了妻子Stacey在他康复过程中提供的巨大支持，以及David Fagenbaum和CDCN团队在寻找治疗方案中发挥的关键作用。他最终通过药物再利用的方法，使病情得到缓解，并积极参与到CDCN的宣传和患者支持工作中。 David Fagenbaum：分享了他本人患卡斯特尔曼病的经历，以及他如何通过药物再利用的方法使病情得到长期缓解。他介绍了CDCN的成立和工作，以及他们如何利用人工智能技术来寻找现有药物治疗各种疾病的新用途。他强调了在治疗罕见病的过程中，既有成功的喜悦，也有失败的痛苦，但他们始终坚持不懈地努力。 Grant Mitchell：介绍了罕见病的现状，以及制药公司缺乏研发罕见病药物的经济激励。他介绍了Every Cure非营利组织的成立和工作，以及他们如何利用人工智能技术来寻找现有药物治疗各种疾病的新用途。他强调了Every Cure团队的奉献精神和他们所取得的成就。 Stacey Gravina：讲述了她在Gary患病期间所经历的痛苦和焦虑，以及她对Gary康复的巨大贡献。 Lauren Bright Pacheco：作为主持人，她串联了整个故事，并对Gary、David和Grant的经历进行了总结和反思。

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David Fagenbaum's life was transformed by his mother's battle with cancer and his own struggle with Castleman disease, leading him to repurpose existing drugs for new treatments.

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Gary Gravina, a skilled carpenter and Marine, was rushed to the ER in 2016 due to severe flu-like symptoms which morphed into a brutal battle with a mysterious disease. Discover how Gary's dire condition would lead him to Dr. David Fajgenbaum and Dr. Grant Mitchell, who had become experts on his rare disease. See how their collaboration not only saved Gary’s life but also significantly impacted the field of medicine.

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Case #18: Every Cure Pt.2 (Gary) 39:20 Share

Symptomatic: A Medical Mystery Podcast

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Case #18: Every Cure Pt.2 (Gary)