cover of episode ARCHIVE Assisted dying: What do terminally ill people think?

ARCHIVE Assisted dying: What do terminally ill people think?

2024/11/18
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Media Storm

People
A
Anne
D
Dr Fenella Craig
E
Ellie Bull
G
Gareth Ward
J
Julie Kembree
K
Kit
M
Mathilda Mallinson
N
Norfolk
W
Warwick Jackson
Topics
Mathilda Mallinson: 本期节目探讨了英国关于安乐死法案的辩论,以及绝症患者及其家属的真实经历。法案的通过将具有历史意义,但目前讨论中缺乏绝症患者的声音,这令人担忧。法案规定了严格的审批流程和处罚措施,以防止滥用。 Kit: 作为一名患有晚期癌症的患者,Kit渴望拥有安乐死的选择权,以便能够在丈夫的怀抱中平静地死去,而不是在痛苦中挣扎。她认为,拥有安乐死的选择权是个人自由和尊严的重要体现,并与被动的“活着”的状态形成对比。 Gareth Ward: Gareth Ward的父亲患有前列腺癌,在长达15年的痛苦折磨后,最终选择用猎枪自杀。他认为父亲的行为并非自杀,而是为了结束痛苦的死亡过程,并希望通过分享父亲的故事来推动安乐死合法化,认为这是一种“缩短死亡”而非“缩短生命”的行为。 Norfolk: Norfolk的丈夫患有运动神经元疾病,在无法忍受疾病的折磨后,试图自杀,但最终未能成功。这突显了在安乐死非法的情况下,患者面临的困境和绝望。 Anne: Anne的丈夫在瑞士尊严死组织接受了安乐死,整个过程平和而有尊严。她分享了这段经历,并强调了如果英国有安乐死合法化,可以避免在国外寻求帮助的麻烦和痛苦。她本人也因为协助丈夫前往瑞士而被警方调查,这给她带来了巨大的精神压力。 Ellie Bull: Ellie Bull代表“尊严在消逝”慈善机构,她呼吁修改法律,允许患有绝症且神志清醒的病人可以寻求医生的帮助结束生命。她认为,现行法律极其严格,虽然很少有人因此被起诉,但调查和审判过程会给当事人带来巨大的压力和创伤。 Julie Kembree: Julie Kembree分享了她照顾患有罕见遗传代谢疾病的双胞胎女儿的经历,并强调了临终关怀的重要性。她认为媒体对临终关怀的报道往往过于悲观,忽略了临终关怀在提高患者生活质量方面的积极作用。 Dr Fenella Craig: Dr Fenella Craig指出,临终关怀的重点是帮助病人尽可能好地生活,而不是死亡本身。由于对死亡的污名化,许多人未能获得所需的临终关怀服务。 Warwick Jackson: Warwick Jackson的妻子安妮死于腹膜癌,在临终阶段遭受了巨大的痛苦,临终关怀未能有效缓解她的痛苦。他认为,如果安乐死合法化,安妮可以避免这种痛苦的死亡。这段经历给他带来了创伤后应激障碍。

Deep Dive

Key Insights

Why is the assisted dying bill being debated in the UK significant?

It marks a historic moment for the UK, which has one of the most punitive approaches to assisted dying in the liberal world. This is the first time assisted dying has been debated and voted on in the UK Commons in nearly a decade.

What are the key provisions of the assisted dying bill in the UK?

The bill would legalize medically assisted dying for terminally ill, mentally competent people with six months or less to live. It requires approval from two doctors and a high court judge over a minimum 21-day period. Coercion would carry a penalty of up to 14 years in prison.

Why is there a lack of voices from terminally ill people in the assisted dying debate?

The British public seems to be terrified of looking at death, and by refusing to hear from terminally ill individuals, society is abandoning them to face death alone.

What does Kit, a terminally ill patient, want for her death?

Kit wants to die in her husband's arms, falling asleep and not waking up, rather than in a hospital bed or drugged out of her mind. She believes assisted dying should be an option for people like her.

How does Gareth Ward describe his father's decision to end his life?

Gareth believes his father's act was not suicide but a mercy. His father, suffering from terminal cancer, wanted the pain and suffering to stop and took control of his death.

What challenges did Patrick, diagnosed with motor neurone disease, face in trying to end his life?

Patrick struggled to find a way to end his life legally, as assisted dying is illegal in the UK. He had to open a bank account in his name to order items discreetly, fearing prosecution if his plans were discovered.

What is the cost and process of using Dignitas in Switzerland?

Using Dignitas costs around £10,000 and involves a trip to Switzerland. The process is filmed and requires the individual to confirm their decision multiple times, with safeguards in place to prevent coercion.

Why does the current UK law on assisted dying force people into difficult choices?

The law forces terminally ill people to choose between suffering, attempting suicide, or going to Switzerland for assisted dying, which is costly and not accessible to everyone.

What is the current UK law on assisted dying, and how does it impact families?

The Suicide Act of 1961 makes assisting someone's suicide a crime, punishable by up to 14 years in prison. This causes stress and trauma for families, as they fear prosecution even for helping loved ones access Dignitas.

What is the role of palliative care in the assisted dying debate?

Palliative care aims to improve quality of life and mitigate suffering for terminally ill patients. However, it doesn't work for everyone, and some patients still face unbearable suffering despite receiving palliative care.

Shownotes Transcript

The End of Life Bill being debated in UK parliament marks a historic moment for a country with one of the most punitive approaches to assisted dying people in the liberal world.

But here at Media Storm, something confuses us about the debate now unfolding in the news, which is the distinctive lack of voices of people for whom the bill is actually designed. People who are terminally ill.

So we bring you back an episode dedicated to platforming people who are dying and their loved ones. Theirs are the testimonies anyone refusing legal reform must answer to.

The episode is hosted by Mathilda Mallinson.

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