cover of episode Podcast Extra: Heterotaxy and Hearts

Podcast Extra: Heterotaxy and Hearts

2018/4/20
logo of podcast But Why: A Podcast for Curious Kids

But Why: A Podcast for Curious Kids

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Ethan Chandra
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Jane Lindholm
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Ethan Chandra: Ethan分享了他从出生至今与异位症和心脏疾病抗争的经历,包括多次心脏手术、植入起搏器以及由此带来的身体和情绪上的挑战。他用孩童特有的视角描述了手术疤痕、起搏器的位置和形状,以及他感受到的害怕、悲伤和快乐等复杂情绪。他勇敢地面对疾病,并表达了对家庭的依赖和爱。 Ali Chandra: 作为Ethan的母亲,Ali在访谈中引导Ethan表达自己的感受,并分享了家庭在面对Ethan疾病时的应对方式和情感历程。她展现了对孩子的关爱和支持,以及对家庭成员之间情感的理解和包容。 Zoe Chandra: Ethan的姐姐Zoe在访谈中简短地表达了对弟弟的支持和关爱,体现了姐弟之间深厚的情感联系。 Jane Lindholm: Jane Lindholm作为主持人,引导访谈的进行,并对Ethan的经历和家庭情感进行总结和升华。她强调了勇敢面对挑战、允许拥有多种情绪以及家庭支持的重要性。她还扩展了话题,讨论了兄弟姐妹在面对家庭成员患病时的复杂情感,鼓励孩子们与成年人沟通,寻求帮助。

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Ethan Chandra, a three-year-old from New Jersey, shares his experience living with heterotaxy, a condition where organs are not in the right place, which often affects the heart and requires multiple surgeries.

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After hearing our episode about hearts, 3yo Ethan Chandra, from Middlesex, NJ, wanted to share the story of his own heart. In this podcast extra, Ethan and his 5yo sister Zoe and their mother, Ali, talk about what it's been like for Ethan to live with a condition called heterotaxy.