What long COVID taught me about life (and data) | Giorgia Lupi
2024/10/16
TED Talks Daily
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Giorgia Lupi
Giorgia Lupi：数据不仅仅是数字和趋势，更是记录生活故事的载体。她以自身的长新冠经历为例，讲述了如何利用数据可视化的方法记录症状、分析病情，并最终帮助自己康复。她强调，数据可以帮助我们更好地了解自己，与他人建立联系，并促进理解和共情。在与长新冠抗争的四年里，她详细记录了每日症状、治疗方案、生物指标、饮食和活动等数据，并将其整理成可视化图表，向《纽约时报》投稿，引发了广泛共鸣。文章以1374天的长新冠生活为主题，用色彩鲜艳的笔触描绘了症状的起伏变化，并展现了大量的医疗记录和经济支出，真实地展现了长新冠患者的困境。文章结尾处，她还收集了其他长新冠患者的心声，表达了他们对恢复健康生活的渴望。
Giorgia Lupi：在经历了最初的症状记录和数据分享后，她意识到仅仅关注症状并不能帮助她康复。于是，她转变了数据收集的方式，开始专注于记录自己的进步和积极体验，例如能够行走、进行轻微运动、与朋友共进晚餐等，并停止了对自身症状的密切监控。这种转变并非忽视疾病，而是基于神经科学的“大脑再训练”方法，通过改变对症状的认知和反应来促进康复。她强调，积极的信念和关注点对于康复至关重要，并分享了她康复过程中的积极变化和对未来的希望。她最终意识到，我们应该有选择地关注数据，因为关注点决定了我们是谁以及我们所处的世界。积极的信念和持续的努力是康复的关键。
Deep Dive
Data is not just about numbers; it's a powerful tool for storytelling. By focusing on qualitative data, we can add context and nuance to narratives, making invisible layers tangible and inspiring women through woven data patterns in fashion.
- Data can be used to tell stories that are anchored in numbers but defined by small, qualitative details.
- A microsite was designed to visualize the break down of plastic into microplastics polluting the ocean.
- A fashion collection was designed using data patterns representing the achievements of women scientists.
- Data was used as a language for communication between friends for a year, resulting in a collection of postcards displayed at MoMA.
Shownotes Transcript