cover of episode Evening Edition: Raising Awareness About Down Syndrome

Evening Edition: Raising Awareness About Down Syndrome

2025/3/22
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Dan Schreck
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Danny Schreck
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Tonya J. Powers
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Tonya J. Powers: 世界唐氏综合征日是一个提高公众意识、倡导和支持唐氏综合征患者及其家庭的重要日子。唐氏综合征患者和我们一样,只是他们通常更快乐,更能给他人带来积极影响。我们需要了解他们,接纳他们,并为他们提供必要的支持。 Dan Schreck: 我和我的妻子在2017年圣诞节迎来了我们的第五个孩子,Rose,她被诊断出患有唐氏综合征。起初我们感到迷茫和恐惧,但随着时间的推移,我们发现Rose给我们的家庭带来了巨大的快乐。她是一个独特而充满活力的人,她的存在丰富了我们的生活。许多父母在面对唐氏综合征孩子的诊断时,会感到恐惧和担忧。我们需要帮助他们克服恐惧,认识到接纳差异的重要性。Jerome Lejeune 基金会致力于唐氏综合征的研究和护理,我们开展了大量的研究项目和临床试验,以改善患者的生活质量。我们也致力于建立一个更完善的网络,包括医生、家长和人工智能辅助系统,为患者及其家庭提供全面的支持。 Danny Schreck: 我的妹妹Rose患有唐氏综合征,她是一个乐观开朗、富有同理心的人。她总是充满活力,积极地与周围的人互动,她的快乐感染着我们所有人。她虽然可能无法成为一名火箭科学家,但她拥有其他许多美好的品质,例如高度的同理心和情感表达能力。她教会我如何去爱,去接纳,去欣赏生命中的不同。 Tonya J. Powers: 我们需要更多地了解唐氏综合征,并为患者及其家庭提供更多的支持。

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World Down Syndrome Day is celebrated annually on March 21st to raise awareness and support for individuals with Down syndrome. It's a day to promote understanding and inclusion, highlighting the positive contributions of those with this genetic condition.
  • World Down Syndrome Day is observed globally on March 21st.
  • The day aims to raise awareness and encourage support for individuals with Down syndrome.
  • It emphasizes the importance of inclusion and understanding of people with Down syndrome.

Shownotes Transcript

March 21st is 'World Down Syndrome Day', first established in 2012 in order to raise public awareness of Down syndrome. Down syndrome occurs when someone is born with an extra copy of 'chromosome 21' and it is not yet know why this syndrome occurs. As joyful as those with Down syndrome can be, they and their families need support in certain ways that can improve the lives of everyone impacted.

FOX’s Tonya J. Powers speaks with Dan Schreck, President and Chairman Jerome Lejeune Foundation USA, and his son Danny Schreck, who both share the latest advancements in research of the syndrome, improved medical and emotional support resources for families.

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